Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives

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dc.authoridCeyhun Bozkurt / 0000-0001-6771-9894en_US
dc.authorscopusidCeyhun Bozkurt / 6602784315
dc.authorwosidCeyhun Bozkurt / AAL-5043-2021
dc.contributor.authorİncesoy Özdemir, Sonay
dc.contributor.authorTaçyıldız, Nurdan
dc.contributor.authorVaran, Ali
dc.contributor.authorKebudi, Rejin
dc.contributor.authorZülfikar, Osman Bülent
dc.contributor.authorCelkan, Tülin Tiraje
dc.contributor.authorŞahin, Gürses
dc.contributor.authorÇorapçıoğlu, Funda Vesile
dc.contributor.authorKeskin Yıldırım, Zuhal
dc.contributor.authorPınarlı, Faruk Güçlü
dc.contributor.authorOlgun, Hatice Nur
dc.contributor.authorSarı, Neriman
dc.contributor.authorDağdemir, Ayhan
dc.contributor.authorÖzyörük, Derya
dc.contributor.authorEren, Tuba
dc.contributor.authorÇakır, Fatma Betül
dc.contributor.authorAdaklı Aksoy, Başak
dc.contributor.authorBozkurt, Ceyhun
dc.contributor.authorGüler, Elif
dc.contributor.authorÖzgüven, Ali Aykan
dc.contributor.authorErbey, Mehmet Fatih
dc.contributor.authorBerber Hamamcı, Melda
dc.contributor.authorDinçaslan, Handan
dc.contributor.authorÜnal, Emel
dc.contributor.authorKantar, Mehmet
dc.date.accessioned2020-12-24T13:12:40Z
dc.date.available2020-12-24T13:12:40Z
dc.date.issued2020en_US
dc.departmentİstinye Üniversitesi, Tıp Fakültesi, Dahili Tıp Bilimleri Bölümüen_US
dc.description.abstractAim: The main purpose of this study is to determine the current status of long-term follow-up (LTFU) for childhood cancer survivors and the challenges of LTFU for pediatric cancer survivors at pediatric oncology institutions in Turkey. Material and methods: A questionnaire was e-mailed to the directors of 33 pediatric oncology centers (POCs) registered in the Turkish Pediatric Oncology Group (TPOG). Of these 33 active TPOG institutions, 21 participated in the study and returned their completed questionnaires. Results: Only 1 of the 21 participating centers had a separate LTFU clinic. The remaining centers provided LTFU care for childhood cancer survivors at the pediatric oncology outpatient clinic. Of these centers, 17 (80.9%) reported difficulty in transition from the pediatric clinic to the adult clinic, 14 (66.6%) reported insufficient care providers, and 12 (57.1%) reported insufficient time and transportation problems. As neglected late effects, 16 (76.1%) centers reported psychosocial and getty job problems and 11 (52.3%) reported sexual and cognitive problems. None of the centers had their own LTFU guidelines for their daily LTFU practice Conclusion: This study was the first to gain an overview of the needs of POCs and the gaps in survivorship services in Turkey. The results from this study will help to develop a national health care system and national guidelines for pediatric cancer survivors.en_US
dc.identifier.citationTaÇyildiz, N., Varan, A., Kebudİ, R., ZÜlfİkar, O. B., Celkan, T. T., Şahİn, G., ... & DaĞdemİr, A. (2020). A cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country; Turkey: current status, challenges and future perspectives. Turkish Journal of Medical Sciences.en_US
dc.identifier.doi10.3906/sag-1911-193en_US
dc.identifier.endpage1921en_US
dc.identifier.issn1303-6165en_US
dc.identifier.issue50en_US
dc.identifier.pmid32628434en_US
dc.identifier.scopus2-s2.0-85098798480en_US
dc.identifier.scopusqualityQ3en_US
dc.identifier.startpage1916en_US
dc.identifier.trdizinid535714en_US
dc.identifier.urihttps://www.doi.org/10.3906/sag-1911-193
dc.identifier.urihttps://hdl.handle.net/20.500.12713/1288
dc.identifier.volume8en_US
dc.identifier.wosWOS:000600735500021en_US
dc.identifier.wosqualityQ4en_US
dc.indekslendigikaynakWeb of Scienceen_US
dc.indekslendigikaynakScopusen_US
dc.indekslendigikaynakPubMeden_US
dc.indekslendigikaynakTR-Dizinen_US
dc.institutionauthorBozkurt, Ceyhun
dc.language.isoenen_US
dc.publisherScientific and Technical Research Council of Turkeyen_US
dc.relation.ispartofTurkish journal of medical sciencesen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/openAccessen_US
dc.subjectLong Term Follow-upen_US
dc.subjectTurkeyen_US
dc.subjectPediatric Oncologyen_US
dc.subjectSurvivorshipen_US
dc.titleCross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectivesen_US
dc.typeArticleen_US

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